Can I just talk honestly for a moment? Abe's surgery is coming up- at least I think it is. For months and months we've had this plan set in place, we've made hotel arrangements, babysitters, and scheduled off work. The plan was to implant Abel sequentially- meaning that he needs both sides implanted (bilateral), but we were planning on breaking up the procedure into two different surgeries spaced three months apart. We chose to do this because of a scary statistic we'd heard regarding balance issues when the surgery was done with both ears. We felt confident in our decision. Now, just days before his first surgery, we are having second thoughts. We've since done much research and asked around for professional and parental opinions and we've almost changed our minds. We want it done at the same time now. There are a whole host of pros and cons that I won't get into. Anyway, because I need that plan set in place- because I was counting on it- I feel unnerved now. More so than I already was. Yesterday, J called the surgeon to tell him we had changed our minds and talk to him about rescheduling or keeping the same date and implanting both that day. Just typing that out feels like fifty pounds of weight on my shoulders as it will likely change all the appointments we have set in place over the next few months. The Army taught me that I can't plan. I mean, I can, but I should have loose expectations of those plans coming to fruition. I don't know why I thought that when we parted ways with the Army that I would have more control. Anyway, I'm so nervous. Nervous that his surgery will be pushed back even further. Nervous what the surgeon, case worker, and audiologist all think about our decision (or indecision). Nervous that something will go wrong. Nervous that I'll never be able to speak to my second born and have him hear and understand me. Parents of kids with cochlear implants keep telling me- "Just wait! You will be amazed." I hope so. Right now, all I know is that Abel cries and screams at everything. He can't tell us what he wants so he just cries out of frustration. His signing is decreasing as we are trying to focus on listening and I feel as if I'm a huge disservice to him all around. I have so much guilt. The other parents I know who have a child with hearing loss do not have two other babes that need a lot of attention. They are working at home with their child in addition to the years of therapy that this sort of procedure will require. I don't know how to balance trying to help Abel "listen" and eventually speak when there are two other very loud little people thrown into the mix. It has been my thought since day one- I wish I could help him. I feel like I can't.
